1. After our first IVF failed, I asked for help creating a list of questions for the doctor. I went in to our appointment feeling prepared, and it was so helpful. I think you're on the right track. We can't know what is important unless we ask. And, no, I'm not an expert, and yes, I trust my doctor, but I firmly believe that doing your own research and becoming an active partner in your own healthcare is so important.

    I hope that your next appointment leads to some answers. Good luck!

  2. Hi from ICLW! My doctors have never looked at me like a freak for asking for ultrasounds to check questionable pain, so I don't think your's should be any different. All of my non-pregnancy/miscarriage ultrasounds have been related to the cysts I kept insisting I had. I don't have PCOS, but I'm apparently very sensitive to cyst pain. :-/

  3. Here from ICLW. Let me start by saying that PCOS takes a bit to be diagnosed. Irregular cycles is definitely a hallmark symptom, but multiple cysts on the ovaries (think string of pearls) is usually another sign. Even with that, they need to do some testing to figure out what's going on.

    In short, find a doctor who you think will take you seriously. Explain your concerns and see if they are willing to do some investigation. Keiko Zoll has a number of posts called the Voices of PCOS. In addition, this site has some useful information: http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001408/

    Hopefully your next appointment will lead to some answers and a plan of attack. Good luck!

  4. Hey there, I've had my official PCOS diagnosis for over 13 years. I have some information about supplements and PCOS on my blog. There is a tab at the top. Best of luck!

  5. PCOS can be very confusing and difficult to diagnose because the symptoms really can vary widely. For example, I'm an odd case because I don't have polycystic ovaries. Every ultrasound they've done on me (and I've had PLENTY) have shown that I don't have cystic ovaries. Weird as it sounds, some with PCOS don't have that. And not all of us have weight issues. (There are a lot of "thin cysters" out there.) But what we all have in common are whacky hormones, usually excess androgens.

    I found the Soul Cysters message board to be a wonderful source of information. I've learned more from the women on there than I have from my doctors. I highly recommend checking out the message board and maybe asking some questions of the veterans. They're a wonderfully supportive group of ladies.

    It also sounds to me like your doctors have just kind of thrown that diagnosis at you without exploring it further. I'd definitely recommend that you not only get another ultrasound, but that you also get your hormone levels checked with cd3 blood work.

    Finally, I'm sorry if I freaked you out by suggesting that you still have PCOS (but maybe you never did?)! I was pretty devastated when I was first diagnosed, thinking it meant I'd never have children. But it can be managed and most women with it DO end up conceiving. If you have any questions or just need to talk, please feel free to email me: daphoenus@gmail.com

  6. I think it's always best to go in prepared! But it also depends on what all you are willing to do, will knowing make a difference or will you still go through IVF? It's still good to know, but if it's not going to change the name of the game then it might not matter as much. But, if it were me, I would still want to know. Especially because it may have an affect on your IVF cycle (I don't know if it would, but wouldn't you rather know that they are doing everything right for your given situation?) That's just my 2 cents.

    Thanks for the blogger award! I'm going to do a post on it in a few days, it was super sweet of you!!